Friday, May 24, 2013

Surgery and Seizures

With the recommendation of the pediatric surgeon and our own knowledge of what is best for Kahsay we have decided to have the nissen and g tube surgery.  He said with a child who has seizures and neurological damage his puking could get worse.  It is scheduled for June 5.  He will be in the hospital for about 3 days.  The doctor explained the g tube surgery similar to piercing an ear.  He said it literally takes 10 minutes and is a simple procedure.  The nissen is more complex.  The surgeon we spoke with said he prefers to make an incision and have a better look at the stomach.  He will have a better handle on how tight to tie the esophagus and it is less likely it will have to be done a second time.  There is an option for a laparoscopic  procedure but this is used most of the time for adults.  It can be used in children and is less invasive but I like the idea of the doctor having the best look possible.
I never thought I would be so excited to have my child go under the knife.  Kahsay just had a coughing, puking week.  Jason and I both said it was the best confirmation we could have asked for.  He also was weighed and still did not hit the 18 lb. mark.  My poor little buddy needs to get some chub on his bones.  He needs to be able to laugh, sneeze, and cough without puking.
We are still working on the correct dose of medication for his seizures.  He is still having them but we have seen less.  The side effects of the medication have been minimal.  I am thankful for that.  He couldn't get into the hospital for a video EEG until August.  We are on the waiting list but we are a bit frustrated that we will need to wait that long before we really know how often Kahsay is having seizures, besides the ones we see physical signs of. He has had a few REALLY good days.  He has been content, smiley, playful, and alert.  I am hoping this is all because the medication is working on those seizures.
Thanks for your words of encouragement and commitment to lift us up on prayer.   It gives us strength and  gets us through the difficult days.  

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